Embracing Time: Professor Advocates for the Next Generation

Ken Menkhaus on Campus

He鈥檚 worked in war and famine zones and served in a risky United Nations peace operation. He鈥檚 arranged peace talks between feuding warlords, gotten caught in ambushes and had to flee from dangerous people and places.

Ken Menkhaus wouldn鈥檛 start a story about his career that way.

Granted, it hasn鈥檛 always been the quiet academic life he鈥檇 once envisioned. In 35 years of researching one of the world鈥檚 most tumultuous places, he鈥檚 survived some scary stuff. But he dismisses a narrative defined by those terrifying moments. He insists that his isn鈥檛 the story that needs to be told. He鈥檇 rather draw attention to the bravery, determination and struggles of the many Somalis working to feed their families and bring peace to their war-torn country.

Too often those living in untenable situations don鈥檛 get a say in their fate. He鈥檚 felt that truth from impoverished rural America to violence-weary Somalia, and most recently, among people with the fatal neurodegenerative disease amyotrophic lateral sclerosis (ALS).

The 小优视频 professor is a leading expert on the Horn of Africa. He鈥檚 advised the United Nations (UN), the World Bank and the United States government. He鈥檚 met residents, relief workers and rulers, shepherds, strongmen and soldiers-for-hire: 鈥渢he saints and sinners; missionaries and mercenaries.鈥

鈥淲ith international policy,鈥 he tells students, 鈥測ou鈥檙e often choosing between the best of bad options.鈥

He feels that way about ALS, which he was diagnosed with in 2018 after a year of troubling symptoms.

While he feels its presence in many ways, he鈥檚 grateful that its slow progression in his body has given him the opportunity to advocate for those suffering from the disease鈥檚 cruelest symptoms.

Because Menkhaus doesn鈥檛 just analyze the world鈥檚 wounds鈥攈e wants to figure out the best ways to heal them. Since getting that terrible diagnosis, he鈥檚 harnessed his policy expertise to push for better ALS care services and to help find a cure.

And though he鈥檚 more likely to drive a golf cart around 小优视频 than ride with a flak jacket in an armored personnel carrier through Somalia these days, that sense of mission pervades.

鈥淚鈥檝e always thought of Ken as 小优视频鈥檚 Indiana Jones,鈥 says Julio Ramirez, a fellow professor and close friend. 鈥淗e鈥檚 this easy-going, mild-mannered, incredibly intelligent college professor who I picture slipping off campus, donning his fedora, and heading off on another international adventure.

鈥淚 still see him that way, it鈥檚 just that now, the adventure is a lot more personal.鈥

Becoming an Advocate

Menkhaus kept his diagnosis to himself at first.

He鈥檇 played tennis as a Division I college athlete, then later for fun and in early 2017, fell during a match.

鈥淢y brain said go,鈥 he says, 鈥渂ut my legs said no.鈥

It kept happening. He鈥檇 lose his balance for no apparent reason, and his walking pace slowed. He鈥檇 find it hard to catch his breath during an easy walk. He turned to specialists to solve the mystery.   

He was 56 when he got the ALS diagnosis in March of 2018. His wife Karin鈥檚 parents were visiting from Sweden and he didn鈥檛 want to ruin a happy time, so he didn鈥檛 tell her until after they left two weeks later. They eventually told their children, but generally kept the news within a tight circle of family and close friends for a year. 

鈥淚t鈥檚 devastating to hear that you鈥檝e got an incurable, paralyzing disease with an average three-year life expectancy,鈥 he says. 鈥淚t鈥檚 a terrible way to die鈥攊t鈥檚 just a horrible disease.

鈥淚 took that year to process the diagnosis, and take stock, and read as much as I could to understand the ALS ecosystem. I continued to teach and consult and live my life,鈥 he says. 鈥淚 didn鈥檛 share the diagnosis at first because I didn鈥檛 want people to treat me like 鈥楧ead Man Walking.鈥欌

The C. Louise Nelson Political Science Professor started a new intellectual journey. He pored over studies and talked to his brother, Pete, a medical doctor, and friends like Ramirez, a neuroscientist. Once he went public, he published articles, including an essay for the Joe Martin ALS Foundation. Martin, from 小优视频鈥檚 class of 1962, died from the disease in 2006.

鈥淵ou may be in shock as you read this,鈥 Menkhaus writes in the essay, I have ALS, now what?. 鈥淚 felt like a zombie for the first several days, like I was walking in the world but was no longer of it. It took me a few weeks before the sense of shock began to fade.

鈥淭ry to avoid making major decisions after the diagnosis that will later feel like rash actions,鈥 he advises. 鈥淕ive yourself time to let this new reality sink in. You鈥檒l know when your mind starts to clear, and at that point you can begin to address the many, many decisions ALS forces upon us.鈥

He also produced a series of educational videos with the ALS Association, interviewing medical professionals and people living with ALS. In the interviews he asks thoughtful, practical questions about breathing function, physical therapy and managing respiratory issues associated with the disease.

His slow progression has allowed him to do things many others with ALS can鈥檛. His speech remains unaffected. He walks for exercise and often takes a loop around campus with a cane or rollator.

For a medical research project, he wears sensors around his wrists and ankles to measure his movements and muscle strength. He encourages people with ALS to participate in research when possible.

Menkhaus knows how unusual his case is and feels deep compassion for those with more advanced ALS and their caregivers. His current good fortune, if you can call it that, compels him to advocate for them as long as he鈥檚 able to.

鈥淚 hope that we鈥檒l someday find a way to make this and other neurological diseases manageable,鈥 he says, 鈥渁nd the dream is to one day make it reversible.鈥

Navigating Conflict

Menkhaus often compares the ALS advocacy world to the crises in Somalia.

鈥淵ou don鈥檛 have the tools to predict the next conflict, there鈥檚 no end in sight, and those afflicted don鈥檛 feel like they鈥檝e been heard,鈥 he says. 鈥淚鈥檝e come to appreciate the frustration Somalis must feel when it comes to having a conversation about ending the suffering鈥攊t鈥檚 always controlled by foreigners. It鈥檚 the same for ALS鈥攑eople diagnosed with it don鈥檛 understand why this has happened to them, why a cure can鈥檛 be found, and want more of a voice. Both Somalis and people with ALS demand a greater sense of urgency from those purporting to help them.鈥

The ALS Association recruited him as a board member in 2020, and he now chairs its care services committee.

鈥淲hat I love about Ken is that he brings a very personal knowledge about living with ALS, and there鈥檚 always a scholarly overlay,鈥 says Scott Kauffman, the association鈥檚 incoming board chair. 鈥淲e鈥檒l talk about a situation, and he鈥檒l come back with a report鈥攕ix pages long, single-spaced, analyzing it from an academic perspective, and proposing possible solutions.鈥

Menkhaus weighs the ethics and implications of everything from experimental treatments to trial studies to equitable patient access. He monitors online forums and talks to people with ALS and caregivers about their needs, opinions, and approaches to dealing with the disease.

The ALS space isn鈥檛 an easy place to navigate. Kauffman, whose son Stephen, 37, has lived nearly 10 years with ALS, says as in any community, people disagree.

鈥淲e work with people from all walks of life, socioeconomically, politically and religiously.  We鈥檙e living in a very divided world, and things can get tense,鈥 Kauffman says. 鈥淜en has that calm, scholarly demeanor, and he also has a great sense of humor, which is a skill set the world needs more of right now to defuse tense situations.鈥

Menkhaus also brings his policy expertise into the classroom.

On a balmy fall morning, he and 25 students in his 鈥淚ntroduction to Policy Analysis鈥 class discussed institutional conflict鈥攊n government, corporations, academia and non-profits. He wants them clear-eyed when they enter those worlds.

In making or changing policy, he says, you must question: What is the motivation? Who would benefit? Who could get hurt?

He urges them to seek out people and publications with differing viewpoints.

鈥淚 loved the way he lectured, he really pushed you to think of both sides of every issue,鈥 says Savannah Dukes, who graduated in 2020 and now works as a McKinsey & Company consultant specializing in health care. 鈥淭he way he taught me to think and synthesize information has really come to life in my job.

鈥淗e made it really exciting to learn.鈥

Ken Menkhaus and Somali Friends

Mentor to Many

Many 小优视频 students have considered Menkhaus a loyal, truth-telling mentor with a seemingly endless array of international contacts.

His humor often came through in lectures, and occasionally in grading, Dukes says, including a time when he scrawled on the margins of her paper explaining 鈥渢hat the terror group I wrote about wasn鈥檛 up for interviews.鈥

During her second year at 小优视频, she represented the college as a delegate for the U.S. Naval Academy鈥檚 annual Foreign Affairs Conference, 鈥渂ecause of doors he opened,鈥 she says. 鈥淚 appreciated the way he invested in students鈥攈e opened so many doors that led to so many amazing opportunities.鈥

In 2019, she and Menkhaus went to Nairobi, Kenya to conduct research for her senior honors thesis and a paper they planned to publish together. She interviewed leaders from The United Nations, The International Committee of the Red Cross and other agencies.

鈥淚t was like every night we鈥檇 have dinner with one of his old friends or a former student,鈥 she says. 鈥淎ll of these people were doing really important work鈥攕ome of them at the highest levels鈥擨 was starstruck.鈥 

They visited Sean Brooks, from 小优视频鈥檚 class of 2004, in Nairobi. Brooks first met Menkhaus as a high school senior and has viewed him as a mentor since.

鈥淥ver the years, there are things Ken鈥檚 advised me to do鈥攐r not to do鈥攂ased on his experiences,鈥 Brooks says. 鈥淗e鈥檚 always encouraged me to make pragmatic decisions, but to be as adventurous as possible.鈥

Brooks runs the consulting firm Tethered UP, which supports innovators in countries such as Somalia, Sudan and other challenged areas of east Africa. He鈥檚 often met people who know Menkhaus.

 鈥淚鈥檇 hear, Ken and I traveled upriver to do a farmland mapping,鈥欌 Brooks says, 鈥淥r 鈥楰en and I were in Mogadishu when all hell broke loose.鈥欌

As a Johns Hopkins University graduate student, Brooks attended a lecture Menkhaus gave there.

鈥淗e talked about the situation in Somalia growing worse, and warned that if something didn鈥檛 change, hundreds of thousands of people were going to lose their lives,鈥 Brooks says. 鈥淭he next year they had a famine and hundreds of thousands of people died.

鈥淗e wanted people to listen and understand how bad it was going to be. He鈥檚 the gold standard when it comes to research and analysis鈥攈e鈥檚 respected internationally for that. He has this ability to understand and appreciate the magnitude of problems and come up with a strategy. And he does it from the perspective of someone who really cares.

鈥淲hen I think about others who might have similar professional talents,鈥 Brooks says, 鈥渢hey鈥檙e not nearly as decent or kind or caring as Ken.鈥

Brooks felt a strong sense of grief when Menkhaus told him about the ALS.

鈥淚t was so shocking,鈥 he says. 鈥淏ut Ken has this 鈥業鈥檓 going to understand and figure this out鈥 attitude. He uses that incredibly dynamic set of skills and talents to figure out how he can help people.鈥

Dukes says Menkhaus had warned her before their 2019 trip that he鈥檇 鈥渂e walking like a wounded elephant,鈥 but didn鈥檛 tell her until after her graduation that he had ALS.

鈥淚 was so sad, but then I鈥檇 follow his blog and see that he was doing what he always does鈥攋umping in and trying to fix the problem,鈥 she says. 鈥淚鈥檓 not surprised he took that approach to ALS, for as he taught us, it鈥檚 about choosing between the best of the worst options.鈥

Working for Peace

This isn鈥檛 Menkhaus鈥檚 first confrontation with mortality, though others have been far more violent.

He graduated from Xavier University in Cincinnati and spent a year volunteering for a non-profit agency building houses in Kentucky鈥檚 Appalachian Mountains. He didn鈥檛 get how a region so rich in resources could have such poverty. He decided to explore rural underdevelopment in graduate school.

That led to a doctoral program at the University of South Carolina, and a teaching assistant position at Somali National University. During dissertation field work in 1988, he lived among Somali farmers along the Juba River. Like his neighbors in Appalachia, they had rich farmland but were deeply impoverished and marginalized. He planned to devote his career to rural development, but the 1990 outbreak of civil war in Somalia changed that.

After two years of teaching in Egypt and just before starting at 小优视频 in 1991, he spent a summer in Somalia working with humanitarian agencies responding to the imminent famine and displacement caused by the civil war and government鈥檚 collapse.

鈥淚 flew into a war zone, I had no idea what I was getting into,鈥 he says. 鈥淭here were some really hairy moments, we got chased and shot at numerous times, but I got out of it alive. Not all my colleagues did. One aid worker I was with was shot and killed just weeks after I left to teach at 小优视频.鈥

As one of the very few analysts who had worked inside the Somalia war and famine, he started getting invited to U.S. government and UN meetings about possible peacekeeping operations. In 1993, the UN asked him to serve as a special political advisor in the UN peace enforcement mission deployed to end the civil war and famine. 小优视频 granted him a leave of absence.

鈥淪uddenly I was in the midst of a massive UN peace enforcement operation,鈥 he says. 鈥淚t was a big change for someone who thought I鈥檇 have a quiet academic life. I was flying in helicopters every day, meeting with elders and warlords. We had mortars dropped and shots fired on us. Several of my friends were wounded or killed.鈥

His convoy was ambushed on the way to a local airport.

鈥淏ullets were hitting our car, the UN peacekeepers in our car shot back, and I ended up with a lap full of cartridges, but we got through it. It was a very violent mission,鈥 he says. 鈥淲e were working through a peace process with some warlords who were pretty unpleasant characters.鈥

After the failed UN mission to Somalia ended in 1995, Menkhaus continued to work with international aid agencies on development, peacebuilding and state building projects with Somali counterparts.

He traveled in armored personnel carriers and had to carefully plan meeting safely with Somali colleagues to avoid kidnapping or assassination attempts. In Mogadishu in 2005, Somali colleagues working on a project with him got wind that he might be a target of the jihadi group Al Shabaab.

They quickly whisked him to a dirt runway and onto an empty drug smuggler鈥檚 cargo plane that had dropped off its Khat (a narcotic leaf) in Somalia and was heading back to Kenya. He credits his Somali friends for protecting him and likely saving his life on that, and several other occasions.

But again, he doesn鈥檛 want those close calls to define his time there. He says he spent most of his time talking to people鈥攐ver tea, a meal, at a market or on a farm鈥攖o learn what they needed to heal their country.

鈥淚 have worked with wonderful, committed Somalis who are working so hard to bring back peace and development,鈥 he says somberly. 鈥淭oo many of them have ended up as refugees or dead.鈥

Highest Esteem

The college community鈥檚 affection for Menkhaus dates back to his early days on campus.

As a bachelor, he threw lively parties at his Old Concord Road house, and many a 小优视频 couple began there, including Ramirez and his wife, Annie Porges 鈥85, senior major gifts officer for College Relations.

Ken Menkhaus and Family

Menkhaus met his wife far from 小优视频, at a 1992 UN conference on Somalia peace operations. Karin鈥檚 father headed an international aid agency in Sweden and ran the conference with her help. (On that same day Menkhaus also met a mid-level diplomat from Ghana, Kofi Annan, who later became secretary general of the United Nations.)

He and Karin had a long-distance relationship for two years before getting married in Sweden. They settled in 小优视频 and the parties continued, transitioning into more family-friendly events as children came onto the scene.

鈥淚 do enjoy throwing parties,鈥 he says. 鈥淭here鈥檚 no substitute for good friends, and bringing people together is such great fun.鈥

They have three children, Oskar, a senior at the University of Evansville; Kaisa, a sophomore at Furman University; and Erik, a high school sophomore. Growing up, the Menkhaus kids had endless opportunities to learn.

鈥淚 cannot remember a time when he didn鈥檛 give us lectures,鈥 Kaisa says. 鈥淲herever we went, Dad had a slideshow memorized. Our vacations were educational experiences. He even quizzed us about random facts at the dinner table.鈥

They enjoyed competing; in backyard cricket games, soccer, and for him, on the tennis court. No bad sportsmanship allowed鈥攁 sense of humor remains a family requirement.

鈥淗e always wants us to do our best, but he also encourages self-care and positive attitudes,鈥 Kaisa says. 鈥淗e likes to joke that the Menkhaus blood gives us a competitive nature, but that our mother鈥檚 Swedish blood calms it down and keeps us from getting worked up about losing.鈥

She鈥檚 grateful, and proud of his accomplishments.

鈥淭here is never a moment where I feel my dad does not have my back,鈥 Kaisa says. 鈥淗e is the most reliable person I know and his hard work has given so much to our family. I wish I had his rigor and as positive an attitude.鈥

Ramirez, the R. Stuart Dickson Psychology Professor at 小优视频, figures he鈥檚 spent thousands of hours talking with Menkhaus during their 30-year friendship.

鈥淗e鈥檚 one of the most upbeat, charismatic, lovable, smart people you鈥檒l ever meet,鈥 Ramirez says. 鈥淗e鈥檚 someone who can carry on this interesting, incredibly intellectual conversation鈥攁nd someone you also want to have a beer with.鈥

Their talks cover current events, faculty news, research, sports, health and families.

鈥淗e has great kids and he adores them and Karin,鈥 Ramirez says. 鈥淗e鈥檚 that role model of someone who can juggle the responsibilities of an academic career and be an amazing parent.鈥

The friends often commiserated about the joys of parenting teenagers.

鈥淲e shared a lot of stories about our teenagers, and it would evolve into both of us laughing these big belly laughs,鈥 Ramirez says. 鈥淜en can always make me laugh.鈥

Paying It Forward

Menkhaus kept an even-keeled approach during terms as vice-chair of the faculty and as the political science department chair.

鈥淗e鈥檚 an extraordinary leader and his ability to bring people together to work on solutions is remarkable,鈥 Ramirez says. 鈥淵ou figure that he鈥檚 been doing that in Somalia war zones for a long time, which should make any conflict with the faculty seem like a piece of cake. He was well trained for the position.鈥

ALS has required a shift in Menkhaus鈥檚 work-life balance. He鈥檚 cut back on research, advising and service obligations to manage reduced stamina. He devotes more time to self-care. That includes an occasional round of golf, which he can still play thanks to a foot-ankle brace. He swears his golf game, which he plays with a 23 handicap, has improved despite ALS because his preoccupation with balance has shortened his swing.

In 2019, he shared his diagnosis with a group of friends he鈥檚 gone on an annual golf trip with for years, figuring it was the last time he鈥檇 be able to join them. He鈥檚 still making the trip and hopes that continues for many more years, again feeling gratitude for the disease鈥檚 slow progression.

Before the COVID-19 pandemic started, he played in a member-guest tournament with friend and former 小优视频 professor Tom Kazee and thought it would be a last.

鈥淏ut I had a good day, we tied for first and won $150 worth of swag,鈥 he says with a touch of glee. 鈥淐an you imagine those other golfers when they realized a guy with ALS beat them?鈥

In summer of 2018, his family took a trip of a lifetime to Kenya and Ethiopia so the kids could see part of the region where he鈥檇 spent so much time. They vacationed at the Grand Canyon and southern Utah over Christmas break in 2019, another 鈥渂ucket list鈥 trip.

After a sabbatical last year, he鈥檚 happy to be back on campus, teaching and meeting with students in person. He hopes to keep teaching until he鈥檚 ready to retire, and not because ALS forces him to.

鈥淥bsessing about a breakthrough in my lifetime doesn鈥檛 help anything,鈥 he says. 鈥淢y advocacy comes for the next generation. I can console myself that I鈥檝e had a great life, if my time on this planet is shortened, it鈥檚 not nearly as painful as when it happens to someone much younger.

鈥淚t may be too late for me; I just hope that someday others won鈥檛 have to live with this.鈥

And that鈥檚 why his friend Ramirez compares Menkhaus to the fictional movie hero Indiana Jones.

鈥淗e鈥檚 still trying to make the world a better place,鈥 Ramirez says. 鈥淗e鈥檚 always had that adventurous spirit and a willingness to confront dangerous situations if it meant contributing to the greater good.鈥

Introduction "Grateful for Time: Living With a Difficult Diagnosis"

Racing Time: Andrea Lytle Peet '03


This article was originally published in the Fall/Winter 2021 print issue of the 小优视频 Journal Magazine; for more, please see the 小优视频 Journal section of our website.